Heartbroken parents of terminally-ill one-year-old boy appeal to thieves to return his vital medication
- Poppy Creasey and Jack Goldup had parked their car outside home in Kent
- They got Ayrton out of the car but when she returned his suitcase had gone
- It had medication, blankets, splints for his hands and suction machine charger
- He was diagnosed with neurological disorder Krabbe disease at seven months
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Thieves have stolen vital medication for a terminally ill one-year-old boy from a suitcase in his parents’ car outside their house.
Poppy Creasey, 22, and her partner Jack Goldup had parked their white Seat Ibiza outside their home in Minster, Kent, on Sunday and got little Ayrton out of the car.
They took their son indoors – but when Miss Creasey went back to the car, a dolphin-shaped suitcase which contained his medication had been stolen.
Poppy Creasey (left), 22, and her partner Jack Goldup (right) had parked their white Seat Ibiza outside their home in Minster, Kent, on Sunday and got little Ayrton (centre) out of the car
A dolphin-shaped suitcase similar to the one that was stolen from Miss Creasey’s car boot
The suitcase also held two of his blankets, splints for his hands, the charger for his suction machine and an iPad that he takes on his hospital visits.
Ayrton, who lives with his parents in the Isle of Sheppey village, was diagnosed with the nervous system disorder Krabbe disease when he was seven months old.
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Miss Creasey said: ‘It means he will lose the ability to do pretty much everything – see, hear, smile. He’s not expected to live past two years.
‘I remember putting the dolphin case in the car boot because I remember having to squeeze it in.’
The theft took place outside their home on this road in Minster on the Isle of Sheppey in Kent
The couple managed to get an emergency prescription from a chemist in nearby Sheerness on Monday morning, but that was after Ayrton missed Sunday’s dose.
WHAT CAUSES KRABBE DISEASE?
Krabbe disease occurs when a baby inherits two copies of a mutated gene.
Genes tell the body how to produce proteins. When they are altered, the body’s proteins do not function properly.
Children with Krabbe disease cannot produce enough or any of a crucial enzyme called galactocerebrosidase.
Because children with the illness do not have enough of this enzyme, too much of certain kinds of fats called galactolipids build up in their bodies.
The accumulation of these fats creates a toxic effect.
Most children with Krabbe disease die as a result of respiratory complications, problems that arise because they are immobile or problems caused by decreased muscle tone.
Krabbe disease is found in around one in 100,000 to 200,000 births.
Miss Creasey added: ‘He was completely unsettled – I just can’t believe someone could do this, especially in broad daylight and right outside our home.
‘We didn’t get to sleep until about 4am – it’s left me feeling angry and upset. There is nothing in that case that’s worth anything to anyone apart from Ayrton.
‘We just want it back. The iPad has pictures on it of Ayrton from when he was born that are nowhere else. Ayrton is not going to live for long, so we want to keep everything he’s ever had.
‘We had been in Whitstable and when we got home at about 5.30pm it was raining.
‘We got Ayrton out first – it takes two of us to get him out of the car with his suction machine. Then I came back out and grabbed a few bags from the boot.
‘We said we’d wait for the rain to stop before getting the rest. Ayrton needed to take his anti-seizure medication on Sunday at 10pm, so I went back out to the car at about 9.30pm and his dolphin case was gone.
‘Someone must have taken it, with all his medication in, from the time I had opened the boot and gone in with the bags and come back out again because the car wasn’t damaged.’
Miss Creasey’s purse and make-up bag was also inside. Kent Police are investigating.
Anyone with information should call 01795 419119, quoting reference XY/66238/18 or the anonymous Crimestoppers hotline on 0800 555 111
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