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Hull toddler’s mysterious rash so painful he can’t walk

 

The toddler who has baffled doctors: Two-year-old’s ‘hot and angry’ mystery rash is so painful he can’t walk, eat or wear clothes

  • Two-year-old Ashton Jai Rouse’s face swells up and he can’t eat properly 
  • The rash appears every few weeks and can last for a month
  • Mother Gemma Lilley has complained to her local NHS trust over lack of answers
  • Miss Lilley is hoping other parents will recognise the symptoms and can offer answers.

A mother has begged for help to cure her little boy of a ‘hot and angry’ mystery rash that has left him in agony for over a year.

Gemma Lilley is desperate to know what is causing two-year-old Ashton Jai Rouse to break out in painful and itchy blotches from head to toe.

The mother-of-two said the problem causes her son’s face to swell up and he can’t eat or walk properly or even wear clothes.

The unexplained rash appears without warning every few weeks.Doctors are baffled and say it could be a virus. However Gemma, of Hull, Yorkshire, says the medicines and ointments she’s tried on Ashton have failed to ease her little boy’s suffering. She said: ‘When he’s got the rash he can’t wear clothes, his body just feels to hot. His face goes swollen and blotchy and he struggles to open his eyes.

‘His hands swell so much he can’t hold food, his feet swell so he can’t walk properly. When he’s got the rash I have to carry him about because walking is so painful.

‘It comes out in red lumps and bumps, sometimes it looks his skin is bruising. He gets mad with just itching all the time. When he has it he doesn’t do anything.

‘Sometimes the rash can remain for a fortnight – it’s really frustrating as no cream or medication we have tried has worked.’

Ashton has come out in the red blotches and spots since he was just 11 months old.

It lasts around a week and erupts roughly once a month, and can cause the tot’s feet to swell and become too painful for him to walk on.

Gemma said doctors have described the rash as a viral infection but it has not been fixed by traditional creams or medicine.

‘When he’s got the rash he can’t wear clothes, his body just feels to hot. His face goes swollen and blotchy and he struggles to open his eyes.

‘His hands swell so much he can’t hold food, his feet swell so he can’t walk properly. When he’s got the rash I have to carry him about because walking is so painful.

‘It comes out in red lumps and bumps, sometimes it looks his skin is bruising. He gets mad with just itching all the time. When he has it he doesn’t do anything.

‘Sometimes the rash can remain for a fortnight – it’s really frustrating as no cream or medication we have tried has worked.’

Gemma has made countless trips to her GP, as well as taking him to A&E at Hull Royal Infirmary and appointments at Castle Hill Hospital.

After feeling ‘palmed off’, she made an official complaint to the Care Quality Commission.

She is telling her son’s story in the hope other parents will recognise the symptoms and can offer answers.

She said: ‘They’ve said it’s a viral infection but still nothing has worked. I’ve tried these different creams and medication but nothing’s really helped at all. We’ve been to the doctors so many times but still don’t know how to sort it.

‘When he started on some stronger medication he found it hard to breathe. We want to find a way to fix it but are also being careful not to make it any worse.

‘He’s been getting it every month. The longest he’s had it has been for three weeks, but it usually last a week or two.

‘It gets to the point where he finds it hard walking. At the minute he can’t walk properly or open his eyes wide because everything is so sore.

‘He gets covered in it, these red lumps, from head to foot and just goes really blotchy with it.’

The investigation into his treatment was launched by Hull and East Yorkshire Hospitals NHS Trust following the complaint to the CQC which has now concluded.

An NHS trust spokesman said: ‘We are unable to provide specific comment on Ashton’s case for reasons of patient confidentiality.

‘Following receipt of her complaint in February 2016, members of Trust staff have met with Miss Lilley, investigated her complaint, and subsequently provided a written response in the form of an investigation report.

‘We are sorry to hear Miss Lilley remains dissatisfied with the outcome of the investigation and we would encourage to contact our Patient Advice and Liaison service to discuss this matter further.’A 15-year-old Bristol girl suffering from a mystery rash that has left her with a string of health problems has been told she may never fully recover.

Vicky Archer’s body has been ravaged by the unidentified illness since returning from a family holiday in Menorca in September, leaving her with a full-body rash and suffering from severe memory loss.

But despite undergoing a full-body MRI scan, doctors were left baffled as to what is causing the student from to suffer from a painful, itchy rash and bleeding from the mouth.

Vicky fell seriously ill following a family holiday to Menorca and her parents initially believed her mystery illness could have been caused by a mosquito bite.

However her mother Alison and father Michael, 52, are trying to find out more about a hydrocarbon leak in the sea near where they were staying, where dead fish were seen floating in the sea.

Doctors are baffled by two-year-old Ashton’s condition and say it could be a virus

Gemma has tried various medications and creams but little Ashton is still suffering

Mother Gemma is hoping other parents can help provide answers to her son’s mysterious rash

The unexplained rash appears every few weeks and covers the toddler head to toe

Source: http://www.dailymail.co.ukhttp://www.dailymail.co.uk/health/article-4363320/Toddler-s-mysterious-rash-painful-t-walk.html

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